General Chat

Wendy, well said, I agree with you! Rox xxx

I know it is a sad time when parents find out their child has a disability which means re evaluating hopes, plans etc BUT this baby is alive and he or she is just as valuable a human being as an able bodied baby, worth being given the same love and his or her birth deserves to be celebrated exactly the same way as the birth of a physically whole child. Life will undoubtedly be very different to what they had envisaged but they are still incredibly lucky to have been blessed with this child. Best of luck to your friends and their new baby. xx

That is very sad for your friend and her baby. Anna x

There were certain problems picked up at her 20 week scan, and they were given extra scans and tests....it wasnt until around 28 weeks that they discovered the severity of the problems and since then the doctors have continued to add issues to the list of problems that have already been acknowledged. By which time she is now just past 33 weeks and didnt feel she could go ahead with a termination now.

jill, I can empathise, I wont go into my story, but my heart goes out her, give her a big ((hug))) shes going to need all the support she can get. Roxanne xx

It is very sad news, as someone mentioned earlier how was this missed on earlier scans? My thoughts are with your friend and her family Liz

My thoughts and prayers are with them.

Oh what a shame poor wee thing.Must be terrible for them all. Marion

How awful and sad Im surprised that it was picked up at such a late stage though. Elaine x

Jill that is such sad news. I can empathise to an extent because our 4th daughter was born with several problems including a hole in her heart. She would have been 30 this year. We lost her at 3 months old, but she still brought a lot of joy into our lives. Her siblings always gather at Esther's grave for a family picnic on her birthday. Please pass on my best wishes to your friends.

How sad my thoughts are with them Lil

Jill this is so sad. There are no words but friends like you will be invaluable to them. Daisy

Jill How sad this is for your friend's ,my thought's are with them.

My friend is expecting her second baby in February......and I've only just discovered that her baby will be severely disabled. Its spinal cord is short and abnormal, there are bones missing from its lower spine, lower legs and feet severely deformed . She has just let me know that it looks very likely the baby will be paralysed from the waist down, with little or no bladder/bowel function as well as abnormalities and possible organ problems. She has only a few weeks left to go and was offered a termination, but they decided they couldnt go through that at such a late stage in the pregnancy. I couldnt stop crying earlier when I heard.....my heart just aches for her and her husband and their 3 year old girl. What can anyone possibly say to them as their are no words at all for anything that they are currently going through. All I could say was that I was thinking of her, and would always be there for her.....and that they were all in my thoughts and prayers at such a very sad and difficult time. I know that tonight I will be cuddling my three particularly close and will be forever thankful that I have three healthy children no matter how mad they drive me sometimes. Please spare a wee thought and prayer for my friend and her family... thanks .. Jill x

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