General Chat

Pauline, i am sending special fairy wishes and positive thoughts...If you stay positive in yourself you'll be suprised what you can achieve.... From a full contact kickboxer who is running just over three miles for charity on wednesday - who was told in 1992 that she would never walk again!!!! Stay strong.. LOU XXXXXXXXXXXXXX

Thinking about you Pauline. Enjoy the chocs!

Thank you so much for all your messages of support. It's just overwhelming. I had a cry this afternoon as a delivery of flowers and chocolates arrived from friends in South Wales. It's such a comfort knowing that others are thinking of you. I know that my husband John will be appreciative of the support as well. We have tried to do normal things today - washing, ironing etc, plus we have spent time together this afternoon potting up plants in the garden. I did find time to spend with our grandaughters though. They are only 4 and 1, so don't know what is going on. I am sure that normality will be a huge help to me. I am going back to work on Monday. I keep telling myself that the only difference between last weekend and this one is knowing. In a way it's a relief to know that there is something wrong as I've had a long time of feeling unwell,but not being able to know quite what was wrong. Now I do know, and have to deal with it going forward. The next thing to happen will be a blood test where some is taken from me and given a radio active tag. It will then be reinjected in to me and traced around my body. It will take 4-5 hours, but apparently will be the specialist a better idea as to how to treat the condition. He has said that he will give me tablets which are a mild form of chemotherapy after that is done, and monitor things going forward. Thanks again. I will make sure I keep giving updates. Pauline PS Feeling a bit sick at the moment,but I think that's from eating the chocolates that came - very rich!!

I am so sorry to hear your news Pauline and I'm thinking of you too. Certainly medical science is progressing tremendously all the time. 10 years ago my husband was diagnosed with an extremely rare blood cancer and he has been very ill indeed. On three occasions I was told he wouldn't survive the night. But he did and we rather nervously suggested to the doctors a new drug we found using the internet. He was put on that...had two doses and is now fine!! He now only has annual checkups. So things are often not as bad as first you think. Some practical suggestions for anyone with a serious condition based on our family experiences. Keep a diary of visits to hospital, what the docs say and what drugs you are on. After a few years the hospital notes get so enormous that as you walk in the doctors tend to ask the patient what they are on and what happened last time! Try to take a spouse, family member or friend with you to checkups.......not only for moral support but a second person often remembers more of what is said or can stick up for you when you are feeling too rough. On one occasion the docs were asking my husband if he wanted to die in intensive care or on the cancer ward and I was telling them he couldn't go anywhere till I can work the video recorder! So stay determined and positive...the fighters tend to live longer. Do your own research and become an expert in your own disease or get a family member to do it. That is what saved my husband. Doctors do their best but they cannot keep up with every bit of research being done everywhere.......especially if you have a rare disease. Finally remember a good life is judged by its quality not its length so get out there and do the things you want to do. Good luck Sue

nudge

Hard to put into words what I want to, so my thoughts are with you and your family , and you'll be in my prayers forever and a day.

So sorry to hear your news Pauline. Thinking of you and sending positive thoughts your way. Jean x.

Pauline so sorry to hear this, thinking of you and your family.

Pauline, so sorry to hear your news. Two years ago, I was diagnosed with Addisons Disease, in one way it was a relief to know I hadn't been imagining everything, after so many years of suffering. I was given less than a week to live, but thankfully the treatment kicked in and here I am, thank God. I have down days where I wonder why me, but there are people worse off than me out there. Take it day by day, there are clever people out there finding treatments for all sorts of illness every day, so think positively, one day soon, it will be for your illness. Don't be on your own with this, we are all friends here, we listen, we share our experiences and we care. Good luck. M.

Difficult to find right comforting words at times like these ... but my thoughts and prayers are with you and your family during this very difficult time for you .... god bless xxxxx

Pauline, I am so sorry you have had such horrible news but stay positive and know we are all thinking positive thoughts for you too. We will be hoping and praying that there will be medical progress made in time for it to benefit you, so you can enjoy your family for a long long time. I am usually about on here late at night so if you can't sleep, do look for me or mail me and we can 'chat' Take care, try to find some special joy in each and every day, Liz x

Sorry to hear this..i can only echo what the others have said....If you want to scream and shout, please feel free....There are always friends on here....

Pauline I imagine this news is devastating and you are probably still in shock. But you have some time to come to terms with your illness and sort out your life. You know that there is always someone here to listen when you want to talk about it/be distracted/rant/laugh/let off steam. Very best wishes and positive thoughts to you. Nell

Pauline, so sad to hear this bad news. As many others have said, you never know what the future might bring, and it may well bring a cure within the next five years - lets all hope so. Best wishes to you and your family. Carol x

Pauline, 5 years is a very long time and anything can happen in that time in treatments, cures, management of all sorts of diseases. I know that isn't really going to be of any comfort at the moment as it is human nature to think the worst when given that sort of news until the shock is over and some sort of logic can be brought into thoughts again. My thoughts are with you and your family as you come to terms with your illness and for the coming weeks and months as you learn to cope with it. With my very best wishes, Jacky xx

Pauline, you have my prayers and thoughts. Let's hope and pray that a cure is found in the near future for your disease. Meanwhile make the most of each day, as we all should, we never know what is around the corner. (((((hugs))))) Ann Glos

So sorry Pauline. I cannot think of anything to say except my very best wishes and prayers for you and your family. Pat

Can't imagine how you're feeling at the moment, but please try to stay positive. Cures are being developed all the time. You're in my thoughts and prayers. AL

I am so sorry to hear your news and I will think positive for you and your family

Sorry to hear your news. Medicine changes all the time - hope they find a better way of treating your condition. Last year I was diagnosed with a genetic skin cancer. Five years ago they were treating it will radiotherapy - they discovered this made the cancer multipy so are using other methods to treat it. It now has a normal life expectancy. Hope they find a way to slow down your condition. Penny