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Carers Anonymous Meeting
Profile | Posted by | Options | Post Date |
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Huia | Report | 6 Oct 2009 20:22 |
The charge nurse has told me a few times what they are doing re drugs and yesterday I was told that they are trying to cut back on them. They cant cut them out straight away, have to reduce them gradually, but I cant see it restoring him to the person he was before he went in there. The nurse who has been his primary helper said that she had argued with the doctors each morning about his medication. He used to play his harmonica to her and sing and dance with her (he has never danced with me!). |
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Bob85 | Report | 7 Oct 2009 07:27 |
Hi Huia |
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Huia | Report | 7 Oct 2009 09:42 |
Thank you Bob. (*Gets busy mopping up the keyboard yet again*). |
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+++DetEcTive+++ | Report | 7 Oct 2009 10:10 |
Don't know about you reaching for the tissues, Huia......I'm certainly welling up! |
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Sharron | Report | 7 Oct 2009 11:39 |
It's not really your Phil anymore is it? He kind of slipped away quietly some time ago leaving you lots of happy memories and a man who used to be your Phil. |
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Huia | Report | 7 Oct 2009 19:08 |
Thank you DET and Sharron. As for reaching for the tissues, I have told a lot of people that they have me to thank for the fact that the forestry and tissue making and panadol making industries are thriving this year. |
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Bob85 | Report | 8 Oct 2009 08:43 |
Hi Huia |
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Purple **^*Sparkly*^** Diamond | Report | 9 Oct 2009 04:14 |
Dear Huia, how sad I am for you and Phil, it's so wrong that an active person has had to have his lifestyle curtailed for his own safety and your sanity and I can understand your pain as you see the man you love so changed. I do hope the case conference can show up ways to make things better either by changes in medication or finding somewhere else for Phil to stay where he can get more stimulation and exercise which might bring back a little strength in his legs etc. perhaps. You should not feel guilty in any way, you did all you could for Phil for so long and I could tell how tired and ill you were becoming, so much so that you might both have been in danger due to Phil wandering when you were trying to sleep, had you not been able to get him cared for at the hospital, where I assume he is still living, or have I missed something and he is in a care home now. |
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Huia | Report | 9 Oct 2009 09:06 |
We had myself, son, daughter, granddaughter (adult), Phils sister and her daughter at the conference with a doc and the charge nurse. They explained that they have tried him on various medications at various levels. There is the choice of reducing the meds so he is not so bleary or keeping them going so he is not hitting people, and apparently he has hit some quite hard - not like him at all. Though I think the doc said they have now taken him off the meds. Certainly he didnt look so bleary today. A nurse was feeding him when we arrived. We didnt go over to him, but his sister and niece went to see him after the conference. |
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Jean (Monmouth) | Report | 9 Oct 2009 19:02 |
Glad your son was able to be with you at the meeting and to stay with you for a few hours. Gives you more of a feeling that you are not alone in your grief. I understand what you are saying, that you hope Phil does not last much longer. I agree with you, Altzheimers is one of the rare occasions when I would agree with euthanasia, though even then I would not like to have to make the decision. |
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Purple **^*Sparkly*^** Diamond | Report | 10 Oct 2009 02:19 |
I hope the conference has helped you a little Huia, and with the support you had so everyone heard the same information you are not having to remember it all to pass on as anything you might temporarily forget, someone else from your family and Phil's family will have heard too. I do hope if it comes to a move, you can get him to the home you prefer and things work out without too much disruption for Phil. Nice that Peter stayed over and did a few things for you and mostly, gave you company with your lunch and was there as you mulled over the events of the day. |
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Purple **^*Sparkly*^** Diamond | Report | 10 Oct 2009 02:24 |
I called my elderly relative's family today and it seems certain now that she will never go back to the house she recently had decorated and new heating in, but will have to go to a nursing home. She is becoming frailer and as nothing can be done for her knee she cannot move about on her own so will have to have lots of care, which can't be provided in her home. She has had an infection, a reaction to the antibiotics and developed cellulitis in her arm after some treatment so is really going through the mill, bless her. It is so sad, we used to enjoy our chats by phone and she would tell me anecdotes and info on the family history, now it will be difficult to talk with her by phone. I will have to try hard to get to Banbury area to visit her, but must do it before it is too late. Her d.i.l. was full of moans and groans about an extension they are having on the house, shame they can't do it to accommodate the old lady but they don't sound as if they have ever done enough for her. She was complaining she hasn't much time to clear the house, so I have asked her to make sure she hangs onto any paperwork about the family rather than just sling it out. Bet they will be there quick enough when there is some cash to be had. |
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Huia | Report | 10 Oct 2009 04:46 |
Sorry about your elderly relative, Liz. |
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Huia | Report | 14 Oct 2009 00:30 |
The sore, bloodshot eyes got worse over the weekend, so went to the doc Monday morning. It is conjuctivitis. |
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LindainBerkshire1736004 | Report | 14 Oct 2009 08:01 |
Still keeping you both in my thoughts Huia. |
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Jean (Monmouth) | Report | 14 Oct 2009 19:03 |
Huia, you really are run down! Try a course of multivitamins for a few months. |
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+++DetEcTive+++ | Report | 14 Oct 2009 21:33 |
Hope Phil is happier in the new place. |
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Huia | Report | 15 Oct 2009 01:18 |
I have just received the phone call to say that Phil has been shifted to the private hospital. I wont be visiting for a few days as I still seem to have a virus that is going the rounds. After breakfast I lay on the settee and slept soundly for almost 4 hours, despite a reasonable nights sleep. My eyes are still a bit red and itchy and my throat is not right yet. |
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Purple **^*Sparkly*^** Diamond | Report | 15 Oct 2009 03:59 |
Hi Huia, I hope Phil settles down ok and you get the finances sorted out easily. Hope you end up with enough to live comfortably and to do what you want regarding driving to your choir meetings and such, would hate to see you have to hold back from getting out to see people and visit Phil. |
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Huia | Report | 15 Oct 2009 04:20 |
My friends husband has been diabetic for many years and he doesnt follow the rules as he should. She has had to call for an ambulance several times. She told me recently that he hits her when he is getting an attack and his doc thinks he has had some mini strokes. I just hope she keeps herself safe. |
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